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Rare Bones

Rare Bones

Meet Bob. Bob has a rare genetic disorder — he can die if he breaks his bones. His diagnosis is Hardcastle's Syndrome, and he comes from one of only five families in the world known to be affected by this disease. In 2004 Bob was given a life expectancy of five years and told any broken bone would result in cancer, and could be lethal.

Rare Bones, though providing an in-depth look at a family enduring this rare disease, focuses on a life fully lived. Undeterred by his bone risk, Bob engages in activities like hunting, ice fishing, and demolition derby. Bob also started his own tow truck company, called “Hop-to-It Towing” in honor of his amputated leg. Instead of opting for the doctor recommended desk job, Bob chooses to live out his days his way, and on his terms.

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